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The long-awaited essay collection from one of the most influential voices in disability activism that detonates a bomb in our collective understanding of care and illness, showing us that sickness is a fact of life.

In the wake of the 2014 Ferguson riots, and sick with a chronic condition that rendered them housebound, Johanna Hedva turned to the page to How do you throw a brick through the window of a bank if you can’t get out of bed? It was not long before this essay, “Sick Woman Theory”, became a seminal work on disability, because in reframing illness as not just a biological experience but a social one, Hedva argues that under capitalism—a system that limits our worth to the productivity of our bodies—we must reach for the revolutionary act of caring for ourselves and others.

How to Tell When We Will Die expands upon Hedva’s paradigm-shifting perspective in a series of slyly subversive and razor-sharp essays that range from the theoretical to the personal—from Deborah Levy and Susan Sontag to wrestling, kink, mysticism, death, and the color yellow. Drawing from their experiences with America’s byzantine healthcare system, and considering archetypes they call The Psychotic Woman, The Freak, and The Hag in Charge, Hedva offers a bracing indictment of the politics that exploit sickness—relying on and fueling ableism—to the detriment of us all.

With the insight of Anne Boyer’s The Undying and Leslie Jamison’s The Empathy Exams, and the wit of Samantha Irby, Hedva’s debut collection upends our collective understanding of disability. In their radical reimagining of a world where care and pain are symbiotic, and our bodies are allowed to live free and well, Hedva implores us to remember that illness is neither an inconvenience or inevitability, but an enlivening and elemental part of being alive.

Excerpts from Caren Beilin’s 2019 essay/memoir about reproductive health and the IUD, gendered illness, medical gaslighting, and activism in the chronic illness community.

“The moon is hollow. The moon is hollow says a certain contingent of people, because of aliens (and, also, the moon has experienced bangs on its surface that have apparently made it ring just like a bell).
These people are conspiracy theorists. Paranoid, conclusive, certain. Too certain. They connect the dots with their eager, enormous chalk. They want something to be true. They want, I think, something new to be true, and they are taken (as I am) with the moon being like a bell, two phonemes, moon, bell, beautiful and struck across each other’s false armor, mutable and beautiful.
The moon is a bell, as the theorist Georges Bataille, in 1931, said, ‘The sun is an anus.’ He was arguing about the beauty – the absolute energy – of the copula.

‘The verb to be is the vehicle of amorous frenzy,’ he wrote, the year that Benjamin unpacked his library, alone. The moon is a bell, and I believe this absolutely, sure. The IUD is the RA. The sexual force of the verb, is, to be, of my verbacious being, will knock any noun into the moon and beyond. Everything is a parody, can be anything. The moon is hollow and made of muleskin. The moon is hollow, insofar as it is coated with the agglutinate, the shining coat, of a limit. I cannot go into the moon with my eyesight. I can’t enter my womb from that time (in November 2015) and sit crosslegged by the device, at the base of its suspending embedding, in the oaty red fist of my uterus, and watch the metal loam off its rigid cross-branch – and leech into tissues and activate, or reanimate, flare, or push over my problem. I can’t spy the center of the inception or the core of my being. I only know the timing. My health deteriorated rapidly after it was in, and I know how horrible it is, to cease planning for trips, outings, applications, or children, waiting and watching for how bad and how soon, and that the moon is hollow

This pamphlet excerpts from Blackfishing the IUD, published in 2019 by Wolfman Books, Oakland. With thanks to Caren Beilin, Jacob Kahn, and Justin Carder.

Who decides what happens after sex? The last decade has seen many significant changes to the laws governing women’s reproductive rights around the world, from liberalisation in Ireland to new restrictions in the USA. After Sex offers personal and political perspectives from the mid-20th century to the present day, setting feminist classics alongside contemporary accounts. These essays, short stories and poems trace the debates and tell the stories; together, they ask us to consider what reproductive justice might look like, and how it could reshape sex.

The writers pay special attention to people — both fictional and real — who have sought control over their sexual lives, and the joy, comedy, difficulties and disappointments that entails. But above all, After Sex testifies to the power of great writing to show us why that freedom is worth pursuing — without shame and without apology.

With contributions from: 
Lauren Berlant, Joanna Biggs, Edna Bonhomme, Gwendolyn Brooks, Beverley Bryan, Stella Dadzie and Suzanne Scafe, Storm Cecile, Lucille Clifton, Rachel Connolly, T.L. Cowan, ’Jane Does’, Maggie Doherty, Nell Dunn, Andrea Dworkin, Anne Enright, Deborah Friedell, Tracy Fuad, Kristen Ghodsee, Vivian Gornick, Donna Haraway, bell hooks, Barbara Johnson, Jayne Kavanagh, Lisa Hallgarten and Angela Poulter, Jamaica Kincaid, Patricia Knight, R.O. Kwon, Ursula K. Le Guin, Natasha Lennard, Sophie Lewis, Audre Lorde, Amelia Loulli, Erin Maglaque, Holly Pester, Adrienne Rich, Denise Riley, Sally Rooney, Loretta J. Ross, Madeleine Schwartz, SisterSong, Sophie Smith, Annabel Sowemimo, Amia Srinivasan, Keeanga-Yamahtta Taylor, Judith Jarvis Thomson, Alice Walker and Bernard Williams.

This book stems from the author’s discontents with Lacanian Psychoanalysis, by drawing from psychoanalysts like Félix Guattari and Sándor Ferenczi, as well as authors like Viveiro DeCastro, and Thomas Lamarre, to whom the book is dedicated. 

As Lucas Ferraço Nassif elaborates on the possibility of a multiplicitous Unconscious, or rather, a mass of many Unconscious(es), he attempts here to fold the book itself into the text, to make the organisation of the physical book itself a part of the elaboration. 

This 2nd Edition comes with a few editorial changes, and a slightly different design approach. It is being presented now with a suite of endorsements from a group of exciting writers and researchers, including Persis Bekkering, Thomas Lamarre, and Yuchen Li. Much of the first edition is preserved, and an extra text has been added, written by the editor as a part of the lecture at Ifilnova. There has been a focus on making this book more accessible, so we have reworked the design of this edition in Black & White. 

The Unconscious is Semiotic, not Linguistic, and it only jumps out when you read between the lines. Do you remember, back in 1997, when 600 kids had epileptic shocks whilst watching Television—the Pokémon Shock? This might sound strange at first, but Lucas Ferraço Nassif theorises that, contrary to the claim that this was caused by oscillations of blue and red light alone, it could have been caused by microperceptions and intensities within narrative. As Porygon takes Ash and friends into the digital world, the immanence of unconscious assemblages drags viewers in, too. 

Such is the haptic and imagetic nature of this book. Using several design and editorial strategies, and a particular mode of writing, the author attempts to elaborate on their work on the Unconscious by recreating a similar possibility—where book, language and reader collapse into a composition, an assemblage or a haecceity. Unconsciousness operates as the multiplanar compositions of Japanese Anime do, so this book has been organized accordingly—different texts, different temporalities, different voices—and like the Japanese concept of Ma (negative space), or even like CoreCore, something jumps out of the breaks, the gaps in between the layers, and therein lies, for this book, a departure point for elaborating on not just one, but many, Unconscious(es). 

First published in 2018, Prayers Manifestos Bravery is a collection of Verity Spott’s “Trans* Manifestos”. Written from 2011 and originally published on her blog, the book’s content ranges from concrete poetry to long-form dispatches, confessions and manifestos touching on questions of identity, gender, justice and society. 

“This is a collection of attempted manifestos whose composition began in 2011. It does not pretend to be completed and any life it has is in its capacity for change, movement and instability. These manifestos are described as such because at the time of their composition they felt like attempts of preservation; of life and of the capacity to struggle against life. They are all improvisations. They have not been heavily edited, and they are untidy. We're unsure what we are." — preface by the author

Verity Spott is a poet, teacher and care worker from Brighton, England. She is the author of the books Gideon, Click Away Close Door Say, We Will Bury You, The Mutiny Aboard the RV Felicity, Prayers Manifestos Bravery, Poems of Sappho (in translation), Hopelessness, Coronelles Set 1 and 70 Sonnets. Verity's poetry has appeared in The New York Times and has been translated into French, German and Greek.